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Catching Fire: Women's Health Activism in Ireland and the Global Movement for Reproductive Justice by
For more than a generation, activists and advocacy organizations have been instrumental in agitating for women's health reforms in Ireland. Over the last decade, Irish activists have experienced a number of victories to improve women's health, most notably in 2018 when Ireland passed a referendum to repeal the Eighth amendment, a constitutional ban on abortion. After years of unfavorable laws for women and successive scandals in women's health, Ireland has taken transformative steps to redefine social norms surrounding women's health and reproduction. The case of Ireland's women's health reform offers important insight toward furthering the modern global movement for women's autonomy. Catching Fire narrates the rise of women's health activism in Ireland within a global reproductive justice framework, which aims to understand and dismantle the systems of social inequality that shape, oppress, and restrict reproductive rights and bodily autonomy. The volume focuses on attempts by Irish healthcare reformers and activists to improve Irish women's access to essential healthcare services and links key developments in Irish history to reproductive advocacy efforts in America and beyond. Chapters offer historical context behind the modern reproductive justice movement through case studies on women's health issues such as contraception, abortion, and childbirth in Ireland. Together, these case studies celebrate the ingenuity of Irish activists who personalized reproductive justice through the stories of ordinary women on social media and established the Republic of Ireland as a model for future activist movements. Reaching across groups and eras, Catching Fire highlights the underrecognized historical feminist movements supporting recent women's health activism and the enduring lessons for achieving greater gender equity around the globe.
A City Without Care: 300 Years of Racism, Health Disparities, and Health Care Activism in New Orleans by
New Orleans is a city that is rich in culture, music, and history. It has also long been a site of some of the most intense racially based medical inequities in the United States. Kevin McQueeney traces that inequity from the city's founding in the early eighteenth century through three centuries to the present. He argues that racist health disparities emerged as a key component of the city's slave-based economy and quickly became institutionalized with the end of Reconstruction and the rise of Jim Crow. McQueeney also shows that, despite legislation and court victories in the civil rights era, a segregated health care system still exists today. In addition to charting this history of neglect, McQueeney also suggests pathways to fix the deeply entrenched inequities, taking inspiration from the "long civil rights" framework and reconstructing the fight for improved health and access to care that started long before the boycotts, sit-ins, and marches of the 1950s and 1960s. In telling the history of how New Orleans has treated its Black citizens in its hospitals, McQueeney uncovers the broader story of how urban centers across the country have ignored Black Americans and their health needs for the entire history of the nation.
Disaster Anarchy: Mutual Aid and Radical Action by
'Commendable - a book that prepares us to think about and react to system failures' - Peter Gelderloos Anarchists have been central in helping communities ravaged by disasters, stepping in when governments wash their hands of the victims. Looking at Hurricane Sandy, Covid-19, and the social movements that mobilised relief in their wake, Disaster Anarchy is an inspiring and alarming book about collective solidarity in an increasingly dangerous world. As climate change and neoliberalism converge, mutual aid networks, grassroots direct action, occupations and brigades have sprung up in response to this crisis with considerable success. Occupy Sandy was widely acknowledged to have organised relief more effectively than federal agencies or NGOs, and following Covid-19 the term 'mutual aid' entered common parlance. However, anarchist-inspired relief has not gone unnoticed by government agencies. Their responses include surveillance, co-option, extending at times to violent repression involving police brutality. Arguing that disaster anarchy is one of the most important political phenomena to emerge in the twenty-first century, Rhiannon Firth shows through her research on and within these movements that anarchist theory and practice is needed to protect ourselves from the disasters of our unequal and destructive economic system.
Embodied Politics: indigenous migrant activism, cultural competency, and health promotion in California by
Embodied Politics illuminates the influential force of public health promotion in indigenous migrant communities by examining the Indigenous Health Project (IHP), a culturally and linguistically competent initiative that uses health workshops, health messages, and social programs to mitigate the structural vulnerability of Oaxacan migrants in California. Embodied Politics reconstructs how this initiative came to exist and describes how it operates. At the same time, it points out the conflicts, resistances, and counter-acts that emerge through the IHP's attempts to guide the health behaviors and practices of Triqui and Mixteco migrants. Arguing for a structurally competent approach to migrant health, Embodied Politics shows how efforts to promote indigenous health may actually reinforce the same social and political economic forces, namely structural racism and neoliberalism, that are undermining the health of indigenous Oaxacans in Mexico and the United States.
Evolution of a Movement: four decades of California environmental justice activism by
Despite living in one of the county's most environmentally progressive states, California environmental justice activists have spent decades fighting for clean air to breathe, clean water to drink, and safe, healthy communities in which to live and work. Evolution of a Movement tells their story - from the often-raucous protests of the 1980s and 1990s to activists' growing presence inside the halls of the state capitol in the 2000s and 2010s. Perkins offers a new lens for understanding environmental justice activism in California, tracing how shifting political contexts combined with activists' own efforts to institutionalize their work within nonprofits and state structures. Drawing on case studies and 125 interviews with activists from Sacramento to the California-Mexico border, Perkins explores the successes and failures of the environmental justice movement in California. She shows why some activists have moved away from the disruptive "outsider" political tactics common in the movement's early days to embrace traditional political channels of policy advocacy, electoral politics, and working from within the state's political system to enact change. But while some see these changes as a sign of the growing sophistication of the environmental justice movement, others critique their potential to blunt grassroots power. At a time when environmental justice scholars and activists face pressing questions about the best route for enacting meaningful change, this book provides insight into the strengths and limitations of social movement institutionalization.
Fighting to Breathe: race, toxicity, and the rise of youth activism in Baltimore by
Industrial toxic emissions on the South Baltimore Peninsula are among the highest in the nation. Because of the concentration of factories and other chemical industries in their neighborhoods, residents face elevated rates of lung cancer and other respiratory illnesses in addition to heart attacks, strokes, and cardiovascular disease, all of which can lead to premature death. Fighting to Breathe follows a dynamic and creative group of high school students who decided to fight back against the race- and class-based health disparities and inequality in their city. For more than a decade, student organizers stood up to unequal land use practices and the proposed construction of an incinerator and instead initiated new waste management strategies. As a Baltimore resident and activist-scholar, Nicole Fabricant documents how young organizers came to envision, design, and create a more just and sustainable Baltimore.
It Was Vulgar and It Was Beautiful: how AIDS activists used art to fight a pandemic by
Shortlisted for the J. Anthony Lukas Prize The story of art collective Gran Fury--which fought back during the AIDS crisis through direct action and community-made propaganda--offers lessons in love and grief. In the late 1980s, the AIDS pandemic was annihilating queer people, intravenous drug users, and communities of color in America, and disinformation about the disease ran rampant. Out of the activist group ACT UP (AIDS Coalition to Unleash Power), an art collective that called itself Gran Fury formed to campaign against corporate greed, government inaction, stigma, and public indifference to the epidemic. Writer Jack Lowery examines Gran Fury's art and activism from iconic images like the "Kissing Doesn't Kill" poster to the act of dropping piles of fake bills onto the trading floor of the New York Stock Exchange. Lowery offers a complex, moving portrait of a collective and its members, who built essential solidarities with each other and whose lives evidenced the profound trauma of enduring the AIDS crisis. Gran Fury and ACT UP's strategies are still used frequently by the activists leading contemporary movements. In an era when structural violence and the devastation of COVID-19 continue to target the most vulnerable, this belief in the power of public art and action persists.
Migration, Health, and Inequalities : critical activist research across Ecuadorean borders by
Drawing from an activist research project spanning Loja, Santo Domingo, New York, New Jersey, and Barcelona, this book offers a feminist intersectional analysis of the impact of migration on health and well-being. It assesses how social inequalities and migration and health policies, in Ecuador and destination countries, shape the experiences of migrants. The author also explores how individual and collective action challenges health, geopolitical, gender, sexual, ethnoracial, and economic disparities, and empowers communities. This is a thorough analysis of interpersonal, institutional, and structural mechanisms of marginalization and resistance. It will inform policy and research for better responses to migration's negative effects on health, and progress towards greater equality and social justice.
Never Silent: ACT UP and My Life in Activism by
"Never Silent is a gorgeous book . . . Peter Staley has written an electrifying primer for anyone who's thinking/worrying/wondering about how to change/save the world." --Tony Kushner, Pulitzer Prize-winning playwright of Angels in America The previously untold stories of the life of the leading subject in David France's How To Survive A Plague, Peter Staley, including his continuing activism In 1987, somebody shoved a flyer into the hand of Peter Staley: massive AIDS demonstration, it announced. After four years on Wall Street as a closeted gay man, Staley was familiar with the homophobia common on trading floors. He also knew that he was not beyond the reach of HIV, having recently been diagnosed with AIDS-Related Complex. A week after the protest, Staley found his way to a packed meeting of the AIDS Coalition To Unleash Power--ACT UP--in the West Village. It would prove to be the best decision he ever made. ACT UP would change the course of AIDS, pressuring the National Institutes of Health, the FDA, and three administrations to finally respond with research that ultimately saved millions of lives. Staley, a shrewd strategist with nerves of steel, organized some of the group's most spectacular actions, from shutting down trading on the floor of the New York Stock Exchange to putting a giant condom over the house of Senator Jesse Helms. Never Silent is the inside story of what brought Staley to ACT UP and the explosive and sometimes painful years to follow--years filled with triumph, humiliation, joy, loss, and persistence. Never Silent is guaranteed to inspire the activist within all of us.
Viral Cultures: Activist Archiving in the Age of AIDS by
Delves deep into the archives that keep the history and work of AIDS activism alive Serving as a vital supplement to the existing scholarship on AIDS activism of the 1980s and 1990s, ViralCultures is the first book to critically examine the archives that have helped preserve and create the legacy of those radical activities. Marika Cifor charts the efforts activists, archivists, and curators have made to document the work of AIDS activism in the United States and the infrastructure developed to maintain it, safeguarding the material for future generations to remember these social movements and to revitalize the epidemic's past in order to remake the present and future of AIDS. Drawing on large institutional archives such as the New York Public Library, as well as those developed by small, community-based organizations, this work of archival ethnography details how contemporary activists, artists, and curators use these records to build on the cultural legacy of AIDS activism to challenge the conditions of injustice that continue to undergird current AIDS crises. Cifor analyzes the various power structures through which these archives are mediated, demonstrating how ideology shapes the nature of archival material and how it is accessed and used. Positioning vital nostalgia as both a critical faculty and a generative practice, this book explores the act of saving this activist past and reanimating it in the digital age. While many books, popular films, and major exhibitions have contributed to a necessary awareness of HIV and AIDS activism, Viral Cultures provides a crucial missing link by highlighting the powerful role of archives in making those cultural moments possible.
Womanist AIDS Activism in the United States: It's Who We Are by
Womanist AIDS Activism in the United States: "It's Who We Are" is an in-depth exploration of AIDS advocacy work among Black women. Based on interviews gathered from thirty-six Black women AIDS activists from across the nation, Angelique Harris and Omar Mushtaq examine the ways in which race, gender, sexuality, and spirituality influence the motivations and approaches behind the efforts of the women in the study. The authors use womanism-an epistemological framework that centers the world views of women of color-to better situate this activism within a larger sociocultural and historical context. They find that identity, spirituality, emotions, and experiences with AIDS knowledge all influence the ways in which these activists approached their community activism work. The authors analyze womanism in detail and propose ways in which this framework can be applied more broadly in examinations of community engagement among women of color, and specifically Black women.
Women Resisting Violence: voices and experiences from Latin America by
Women Resisting Violence is an illuminating and powerful account of the ways in which women and girls encounter violence and the bold initiatives they are developing to respond to it. Across Latin America, the number of femicides has grown at an alarming rate, exacerbated by the Covid-19 pandemic. Alongside has come a dramatic increase in domestic violence; loud demands over domestic workers' rights; increased suffering from and fierce resistance to land-grabbing; increased urban violence; violent discrimination against migrants; and the relentless growth of state control over women's reproductive rights. In Women Resisting Violence, case studies and interviews with women leaders from Latin America highlight the multiple and intersecting forms of gendered violence - where race, ethnicity, sexuality, and socio-economic status, and other markers combine to identify, discriminate against, and target women. Collecting a chain of voices, we focus on these women's inspirational strategies for transforming their communities and influencing international laws. Their testimonies underline the importance of culture, commemoration, and the arts in consolidating and amplifying active resistance. Women's voices are loud and clear: gendered and intersectional violence is rampant in Latin America. But women are pushing back. As the Mexican proverb boldly states, ''They wanted to bury us, but they didn't know we were seeds.'WRV Collective: Jelke Boesten is a professor of Gender and Development at the Department of International Development, King's College London. Andrea Espinoza is a feminist researcher focused on women's and Indigenous people's rights in Latin America, particularly in Ecuador and the Andean region. Cathy McIlwaine is a professor of Geography at King's College London. Louise Morris is a journalist and audio producer who's made podcasts, radio, and audiobooks for BBC Radio 4, NPR, Audible, Pottermore and the BBC World Service. Patricia Muñoz Cabrera (PhD) is an international research consultant and trainer on gender and intersectionality in development policies. Moniza Rizzini Ansari is a postdoctoral research fellow at the Federal University of Rio de Janeiro, School of Law. Marilyn Thomson is an independent gender consultant working on issues such as the rights of migrant and refugee women, violence against women and girls, and the care economy. Rebecca Wilson is Managing Editor at Latin America Bureau.
The Least of Us: True Tales of America and Hope in the Time of Fentanyl and Meth by
From the New York Times bestselling author of Dreamland, a searing follow-up that explores the terrifying next stages of the opioid epidemic and the quiet yet ardent stories of community repair. Sam Quinones traveled from Mexico to main streets across the U.S. to create Dreamland, a groundbreaking portrait of the opioid epidemic that awakened the nation. As the nation struggled to put back the pieces, Quinones was among the first to see the dangers that lay ahead: synthetic drugs and a new generation of kingpins whose product could be made in Magic Bullet blenders. In fentanyl, traffickers landed a painkiller a hundred times more powerful than morphine. They laced it into cocaine, meth, and counterfeit pills to cause tens of thousands of deaths--at the same time as Mexican traffickers made methamphetamine cheaper and more potent than ever, creating, Sam argues, swaths of mental illness and a surge in homelessness across the United States. Quinones hit the road to investigate these new threats, discovering how addiction is exacerbated by consumer-product corporations. "In a time when drug traffickers act like corporations and corporations like traffickers," he writes, "our best defense, perhaps our only defense, lies in bolstering community." Amid a landscape of despair, Quinones found hope in those embracing the forgotten and ignored, illuminating the striking truth that we are only as strong as our most vulnerable. Weaving analysis of the drug trade into stories of humble communities, The Least of Us delivers an unexpected and awe-inspiring response to the call that shocked the nation in Sam Quinones's award-winning Dreamland.
The Opioid Epidemic in the United States: Missed Opportunities and Policy Failures by
The current opioid epidemic in the United States began in the mid-1990s with the introduction of a new drug, OxyContin, viewed as a safer and more effective opiate for chronic pain management. By 2017, the opioid epidemic had become a full-blown crisis as over two million Americans had become dependent on and abused prescription pain pills and street drugs. This book examines the origins, development, and rise of the opioid epidemic in the United States from the perspective of the public policy process. The authors, political scientists Kant Patel and Mark Rushefsky, discuss institutional features of the American political system that impact the making of public policy, arguing that the fragmentation of that system hinders the ability to coherently address policy problems, taking the opioid epidemic as an example. The book begins with a brief historical examination of the history of the problem of opioid addiction and crises in the United States and public policy responses to past crises, but the main focus is on the current national public health emergency. The book analyzes the following: The origins of the current crisis Indicators and warning signs pointing to the emergence of a significant public problem Factors that contributed to the opioid crisis Why the crisis emerged in the United States and not in other Western countries The nature and scope of the opioid crisis, including socioeconomic and demographic characteristics and the human, social, and economic costs Presidential administrations' public response, and nonresponse, to the opioid crisis Parallels between the role played by opioid manufacturers and tobacco/cigarette manufacturers in creating the problem of addiction, resulting in high mortality rates, and the public policy response to both This book explores the national policy response to the opioid crisis, as well as state and local government responses and separation of powers, including how the three branches of government deal with the opioid problem. The authors conclude with a discussion of how accurate problem definition, problem diagnosis, and appropriate and timely responses could have produced a more appropriate and robust policy response-policy process tools that will be essential in fighting both the current crisis and the next one. The Opioid Epidemic in the United States is essential reading for policy analysis courses in political science, health, and social work programs, as well as for United States policymakers at the local, state, and national levels.
Opioids by
A current survey and synthesis of the most important findings in our understanding of the neurobiological mechanisms of addiction is detailed in our Neurobiology of Addiction series, each volume addressing a specific area of addiction. Opioids, Volume 4 in the series, explores the molecular, cellular and systems in the brain responsible for opioid addiction using the heuristic three-stage cycle framework of binge/intoxication, withdrawal/negative affect, and preoccupation/anticipation. Highlights recent advances in opioid addiction Includes Neurocircuitry, Cellular and Molecular neurobiological mechanisms of opioid addiction Defines opioid abuse and addiction potential, including biological tolerance
Opioids: Pharmacology, Abuse, and Addiction by
Opioids are responsible for the vast majority of preventable deaths related to drug use, and opioid crisis is a serious international health problem. Opioids are also the mainstay in pain treatment and are invaluable tools in palliative care. The purpose of this book is to present an overview of the complex field of opioid pharmacology through evidence-based chapters in clear language backed up with sound scientific evidence, providing researchers and health professionals with a firm understanding of their effects and mechanisms of action. The authors present an overview of the history of opioids from ancient civilizations to the current opioid crisis, covering state-of-the-art advances on opioid-induced signal transduction, opioids in pain management, and the neuroinflammatory effects of opioids. Also discussed are opioid use disorders and their treatment. The authors also review the growing body of evidence of opioid effects on innate and adaptive immune responses, discussing the molecules involved in the crosstalk between opioids and innate immunity receptors to provide an updated view of those compounds as important regulators of inflammation and host defense against pathogens and damage. The overall purpose is to provide the reader with a deeper knowledge of this field despite the complexities associated with the existence of numerous ligands, receptor subtypes, and complex pharmacological profiles. To this end, the chapter authors are specialists in the field who also have extensive experience in teaching, hoping to lend their expertise in translating complex concepts into comprehensive and clear explanations.
The Prescription-To-Prison Pipeline: the medicalization and criminalization of pain by
In The Prescription-to-Prison Pipeline Michelle Smirnova argues that the ongoing opioid drug epidemic is the result of an endless cycle in which suffering is medicalized and drug use is criminalized. Drawing on interviews with eighty incarcerated individuals in Missouri correctional institutions, Smirnova shows how contradictions in medical practices, social ideals, and legal policies disproportionately criminalize the poor for their social condition. This criminalization further exacerbates and perpetuates drug addiction and poverty. Tracing the processes by which social issues are constructed as biomedical ones that necessitate pharmacological intervention, Smirnova highlights how inequitable surveillance, policing, and punishment of marginalized populations intensify harms associated with both treatment and punishment, especially given that the distinctions between the two have become blurred. By focusing on the stories of people whose pain and pharmaceutical treatment led to incarceration, Smirnova challenges the binary of individual and social problems, effectively exploring how the conceptualization, diagnosis, and treatment of substance use may exacerbate outcomes such as relapse, recidivism, poverty, abuse, and death.
The Rhetoric of the Opioid Crisis by
In The Rhetoric of the Opioid Crisis, Rachel Sussman Kaplan explores the opioid crisis through modernity. This book argues the stakeholders in this crisis have a different rhetorical bias and each group has contributed some willingly in the name of corporate profit and others inadvertently while trying to help patients.
Rhetoric of the Opioid Epidemic: deaths of despair in America by
Rhetoric of the Opioid Epidemic demonstrates that framing the epidemic as a medical issue instead of an effect of moral failing holds more potential for solving the epidemic through medical treatment and reconnecting sufferers back to society. This rhetorical move separates the opioid epidemic from the criminal and immoral frames that were cast upon the crack epidemic and initial framing of the AIDS epidemic. Popular culture and governmental response case studies include: President Trump's March 19, 2018 address to the nation, ODMAP produced by the Washington/Baltimore High Intensity Drug Trafficking in January 2017, news stories from national sources dating from 2015 to 2020 about the chronic pain management debate, two documentaries, Heroin(e) (2017) and One Nation Under Stress: Deaths of Despair in the United States (2019), and Ben is Back (2018).
Syringe Exchange Programs and the Opioid Epidemic : government and nonprofit practices and policies by
Syringe exchange programs and safe injection services are outside-the-box interventions increasingly being used by governments, nonprofits and citizens to address dire issues percolating in tandem with America's burgeoning opioid epidemic. People who inject drugs (PWID)--almost a million Americans annually--commonly use painkillers such as heroin and fentanyl, as well as methamphetamine, benzodiazepines, barbiturates and cocaine. Yet the users themselves are often obscured or marginalized by the bigger picture. This collection of essays covers policies and practices aimed at preventing both opioid-related deaths and related infections of hepatitis and HIV.
Syringe Exchange Programs and the Opioid Epidemic: Government and Nonprofit Practices and Policies by
Syringe exchange programs and safe injection services are outside-the-box interventions increasingly being used by governments, nonprofits and citizens to address dire issues percolating in tandem with America's burgeoning opioid epidemic. People who inject drugs (PWID)--almost a million Americans annually--commonly use painkillers such as heroin and fentanyl, as well as methamphetamine, benzodiazepines, barbiturates and cocaine. Yet the users themselves are often obscured or marginalized by the bigger picture. This collection of essays covers policies and practices aimed at preventing both opioid-related deaths and related infections of hepatitis and HIV.
Whiteout: How Racial Capitalism Changed the Color of Opioids in America by
The first critical analysis of how Whiteness drove the opioid crisis. In the past two decades, media images of the surprisingly white "new face" of the US opioid crisis abounded. But why was the crisis so white? Some argued that skyrocketing overdoses were "deaths of despair" signaling deeper socioeconomic anguish in white communities. Whiteout makes the counterintuitive case that the opioid crisis was the product of white racial privilege as well as despair. Anchored by interviews, data, and riveting firsthand narratives from three leading experts--an addiction psychiatrist, a policy advocate, and a drug historian--Whiteout reveals how a century of structural racism in drug policy, and in profit-oriented medical industries led to mass white overdose deaths. The authors implicate racially segregated health care systems, the racial assumptions of addiction scientists, and relaxed regulation of pharmaceutical marketing to white consumers. Whiteout is an unflinching account of how racial capitalism is toxic for all Americans.
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Just arrived! Sex & Sexuality.
Module I: Research collections from The Kinsey Institute Library & Special Collections. This module focuses on sexology and the work of sex researchers, combining advice sought by members of the public with the corresponding answers, thoughts on research proposals and work sent by academics and medical professionals to the Kinsey Institute. It also includes pamphlets and flyers from various organisations and advocacy groups, and more.
Module II is focused upon the experiences of individuals from across the spectrum of human sexuality, including heterosexual and LGBTQI+ experiences, from the nineteenth century to the present day. Includes information on the Stonewall riots and the resulting movements for change, the beginning of the Pride parades, and the HIV/AIDs crisis. Also includes collections from the ONE Archives at the USC Libraries, and The National Archives, UK, and more.
Activist Affordances: How Disabled People Improvise More Habitable Worlds by
For people who are living with disability, including various forms of chronic diseases and chronic pain, daily tasks like lifting a glass of water or taking off clothes can be difficult if not impossible. In Activist Affordances, Arseli Dokumacı draws on ethnographic work with differently disabled people whose ingenuity, labor, and artfulness allow them to achieve these seemingly simple tasks. Dokumacı shows how they use improvisation to imagine and bring into being more habitable worlds through the smallest of actions and the most fleeting of movements---what she calls "activist affordances." Even as an environment shrinks to a set of constraints rather than opportunities, the improvisatory space of performance opens up to allow disabled people to imagine that same environment otherwise. Dokumacı shows how disabled people's activist affordances present the potential for a more liveable and accessible world for all of us.
Addressing Underserved Populations in Autism Spectrum Research: An Intersectional Approach by
When confronted with the large amount of research about the autism spectrum one can be forgiven for believing that every conceivable aspect has been studied. However, despite the abundance of research, there still remains several autism topics that are not yet comprehensively understood. Addressing Underserved Populations in Autism Spectrum Research: An Intersectional Approachhighlights five areas of autism spectrum research that currently lack a substantial body of literature. These include, autistic seniors, autistic women, fathers raising autistic children, autistics with intellectual disabilities, and autistics from ethnic minorities. Bennett and Goodall explore each area, offering explanations for why they have been overlooked in the existing literature and recommendations and strategies for further research to help us better understand these parts of the autistic community. They also explore and address systemic racism within the autism research community and explain strategies that scholars can use to conduct research that is both respectful of autistics and methodologically rigorous. Readers will gain an understanding of some of the gaps in our knowledge about the autism spectrum and will obtain the tools needed to conduct robust and appropriate research that addresses these gaps.
Black disability politics by
In Black Disability Politics Sami Schalk explores how issues of disability have been and continue to be central to Black activism from the 1970s to the present. Schalk shows how Black people have long engaged with disability as a political issue deeply tied to race and racism. She points out that this work has not been recognized as part of the legacy of disability justice and liberation because Black disability politics differ in language and approach from the mainstream white-dominant disability rights movement. Drawing on the archives of the Black Panther Party and the National Black Women’s Health Project alongside interviews with contemporary Black disabled cultural workers, Schalk identifies common qualities of Black disability politics, including the need to ground public health initiatives in the experience and expertise of marginalized disabled people so that they can work in antiracist, feminist, and anti-ableist ways. Prioritizing an understanding of disability within the context of white supremacy, Schalk demonstrates that the work of Black disability politics not only exists but is essential to the future of Black liberation movements.
Deaf Rhetoric: An Ecology of Health Communication by
This book guides healthcare professionals, hospital administrators, and medical interpreters in the United States (and internationally) in ways to better communicate with Deaf and Hard of Hearing (D/HH) patients and sign language interpreters in healthcare settings. It also provides an overview of the healthcare communication issues with healthcare professionals and D/HH patients, and the advantages and disadvantages of using in-person interpreters vs. video remote interpreting (VRI). Due to technology development, hospital administrators have popularized the use of VRI and reduced the number of in-person interpreting services, which have negatively affected the quality of medical interpreting services and patient-provider communication. The COVID-19 pandemic also has accelerated the move toward more VRI, particularly in the US. The book addresses an understudied aspect of access and is written by an international deaf researcher from Japan who uses American Sign Language (ASL) and English as non-native languages. In order to identify appropriate interpreting services for specific treatments, the author focuses on healthcare professionals' and D/HH patients' interpreting preferences for critical and non-critical care in the US, and offers a new theoretical framework, an Ecology of Health Communication, to contextualize and analyze these preferences. The ecological matrix and its five analytical dimensions (i.e., physical-material, psychological, social, spatial, and temporal) allow readers to understand how these dimensions influence healthcare professionals' and D/HH patients' interpreting preferences as well as the treatment outcomes. This book concludes by prioritizing the use of an appropriate interpreter for specific treatments and allocating funds for in-person interpreters for critical care treatments. Deaf Rhetoric: An Ecology of Health Communication is primarily designed for healthcare professional students and professionals, hospital administrators, medical interpreters, VRI companies, and healthcare researchers. Scholars interested in the communication preferences of healthcare professionals and deaf people also will find this text useful. The book counters some of the power differences between healthcare providers and those who use medical services, and subtly reminds others that deaf people are not solely the receivers of medical care but actually are full people. The field of health care is growing and medical schools are increasingly called on to address cultural competencies; this resource provides a needed intervention.
The Disability Bioethics Reader by
The Disability Bioethics Reader is the first introduction to the field of bioethics presented through the lens of critical disability studies and the philosophy of disability. Introductory and advanced textbooks in bioethics focus almost entirely on issues that disproportionately affect disabled people and that centrally deal with becoming or being disabled. However, such textbooks typically omit critical philosophical reflection on disability. Directly addressing this omission, this volume includes 36 chapters, most appearing here for the first time, that cover key areas pertaining to disability bioethics, such as: state-of-the-field analyses of modern medicine, bioethics, and disability theory health, disease, and the philosophy of medicine issues at the edge- and end-of-life, including physician-aid-in-dying, brain death, and minimally conscious states enhancement and biomedical technology invisible disabilities, chronic pain, and chronic illness implicit bias and epistemic injustice in health care disability, quality of life, and well-being race, disability, and healthcare justice connections between disability theory and aging, trans, and fat studies prenatal testing, abortion, and reproductive justice.　 The Disability Bioethics Reader, unlike traditional bioethics textbooks, also engages with decades of empirical and theoretical scholarship in disability studies--scholarship that spans the social sciences and humanities--and gives serious consideration to the history of disability activism.
Disability in the Time of Pandemic by
COVID-19 has once again illuminated the ways in which health risks and negative health outcomes are tied to economic and social inequalities. Disabled people rank among those most disadvantaged in terms of education, income, and social inclusion and this exacerbated their risk of negative pandemic-related outcomes. From the start, it was clear that disabled people would be disproportionately affected by the pandemic and this solidified as the pandemic unfolded. Disability in the Time of Pandemicis a timely exploration of emerging research into the implications of the COVID-19 pandemic for people with disabilities in their varied communities and across their complex identities. Using the insights, perspectives, and methods of a variety of disciplines including Anthropology, Disability Studies, Education, Physical and Rehabilitation Therapies, Public Health, Psychology, Sociology, and Women's and Gender Studies, authors explore the initial and ongoing effects of the global pandemic on people with disabilities in Canada, India, Poland, and the United States. The Research in Social Science and Disabilityseries is essential reading for researchers and students across the social sciences interested in disability, social movements, activism, and identity.
Falling, floating, flickering : disability and differential movement in African diasporic performance by
Linking African diasporic performance, disability studies, and movement studies, Falling, Floating, Flickering approaches disability transnationally by centering Black, African, and diasporic experiences. By eschewing capital’s weighted calculus of which bodies hold value, this book centers alternate morphologies and movement practices that have previously been dismissed as abnormal or unrecognizable.
To move beyond binaries of ability, Hershini Bhana Young traverses multiple geohistories and cultural forms stretching from the United States and the Mediterranean to Sierra Leone, Nigeria, and South Africa, as well as independent and experimental film, novels, sculptures, images, dance, performances, and anecdotes. In doing so, she argues for the importance of differential embodiment and movement to the creation and survival of Black sociality, and refutes stereotypic notions of Africa as less progressive than the West in recognizing the rights of disabled people.
Integrating Mental Health and Disability into Public Health Disaster Preparedness and Response by
Integrating Mental Health and Disability into Public Health Disaster Preparedness and Response brings together the fields of mental/behavioral health, law, human rights, and medicine as they relate to disaster planning and response for people with disabilities, mental and behavioral health conditions and chronic illness. Children and adults with disabilities, mental/behavioral health conditions and chronic illness remain more vulnerable to the negative effects of emergencies and disasters than the general population. This book addresses the effects of emotional trauma, personal growth and resilience, the impact on physical health and systems of care, and legal compliance and advocacy. Following a philosophy of whole community emergency planning, inclusive of people with disabilities, the book advocates for considering and addressing these issues together in an effort to ultimately lead to greater resilience for individuals with disabilities and the whole community. Provides a public health framework on the phases of disasters, integrating mental health and disability into planning, responding to disasters, and recovering post disaster Offers solutions for disability and disaster needs, as well as planning and systems for service delivery at multiple levels, including individual, local, state and federal Provides global examples of real world tools, best practices and legal principles, allowing the reader to think about the role that disability and mental health play in disaster planning, response and recovery across the world Reflects the best thinking about disaster planning and response and disability-related issues and demonstrates new and creative ways of bringing together these fields to strengthen communities
Just Care : messy entanglements of disability, dependency, and desire by
Just Care is Akemi Nishida's thoughtful examination of care injustice and social justice enabled through care. The current neoliberal political economy has turned care into a business opportunity for the healthcare industrial complex and a mechanism of social oppression and control. Nishida analyzes the challenges people negotiate whether they are situated as caregivers, receivers, or both. Also illuminated is how people with disabilities come together to assemble community care collectives and bed activism (resistance and visions emerging from the space of bed) to reimagine care as a key element for social change. The structure of care, Nishida writes, is deeply embedded in and embodies the cruel social order--based on disability, race, gender, migration status, and wealth--that determines who survives or deteriorates. Simultaneously, many marginalized communities treat care as the foundation of activism. Using interviews, focus groups, and participant observation with care workers and people with disabilities, Just Care looks into lives unfolding in the assemblage of Medicaid long-term care programs, community-based care collectives, and bed activism. Just Care identifies what care does, and asks: How can we activate care justice or just care where people feel cared affirmatively and care being used for the wellbeing of community and for just world making?
The Oxford Handbook of the Sociology of Disability by
The Oxford Handbook of the Sociology of Disability provides a timely and comprehensive overview of the wide range and depth of sociological theory and research on disability-brought together for the first time in one volume. Each section of the Handbook incorporates a uniquely sociological perspective, presented by a wide-range of experts on intersecting social, economic, political, and cultural dimensions of disability, that complements disability scholarship. The 37 chapters in this Handbook, organized into three major sections, provide an assessment of the history of the field, its current state, and the future for research on and in the sociology of disability. The first section reviews frameworks foundational to the study of disability, pushes for the inclusion of broader global perspectives, and addresses important dimensions of representation. The second section presents a combination of perspectives that tie together individual biography, societal contexts, and historic change, while emphasizing continuity and change in the dynamic processes linking individuals, institutions, and structures over time. In the third section, contributors investigate the reproduction of inequality through law, policy, and related institutions and systems, while highlighting how social and political participation empowers people with disabilities and helps to mitigate inequalities and social marginalization. The chapters included in this volume offer a multifaceted resource for students and experienced scientists alike on historical developments, main standards, key issues, and current challenges in the sociological study of disability at the global, national, and regional levels.
Redefining Disability by
The reality of disability--of what it means to be disabled--has primarily been written by non-disabled people. Disability and disabled individuals are often described with pity, presented as burdens, or are background figures in larger non-disabled narratives. Redefining Disability challenges the outsider-dominated approach to disability by centering the disabled experience. This edited volume, featuring all disabled authors and creators, combines traditional academic works with personal reflections, visual art, and poetry. These works address disability and race, sexuality and disability, disability cultures, accommodation, self-diagnosis, and how we manage the obstacles ableist institutions place in our way. The authors address a variety of disabilities, including sensory, chronic pain, mobility, developmental disorders, and mental illness. It is through these testimonies that we hope to redefine disability on our terms; to clearly state that disability is not a bad word, and that all disabled lives have value. Redefining Disability is interdisciplinary, with broad application for undergraduate courses, graduate seminars, or to read for pleasure. Each entry contains discussion questions and/or activities for educators to use in the classroom.
Stigma Stories: rhetoric, lived experience, and chronic illness by
In Stigma Stories: Rhetoric, Lived Experience, and Chronic Illness, Molly Margaret Kessler focuses on ostomies and gastrointestinal conditions to show how stigma is nearly as central to living with chronic conditions as the conditions themselves. Drawing on a multi-year study that includes participant observations, interviews, and rhetorical engagement with public health campaigns, blogs, social media posts, and news articles, Stigma Stories advocates for a rhetorical praxiographic approach that is attuned to the rhetorical processes, experiences, and practices in which stigma is enacted or countered. Engaging interdisciplinary conversations from the rhetoric of health and medicine, disability studies, narrative medicine, and sociology, Kessler takes an innovative look at how stigma functions on individual, interpersonal, and societal levels. In doing so, Kessler reveals how stories and lived experiences have much to teach us not only about how stigma functions but also about how it can be dismantled.
AI and Big Data in Cardiology: A Practical Guide by
This book provides a detailed technical overview of the use and applications of artificial intelligence (AI), machine learning and big data in cardiology. Recent technological advancements in these fields mean that there is significant gain to be had in applying these methodologies into day-to-day clinical practice. Chapters feature detailed technical reviews and highlight key current challenges and limitations, along with the available techniques to address them for each topic covered. Sample data sets are also included to provide hands-on tutorials for readers using Python-based Jupyter notebooks, and are based upon real-world examples to ensure the reader can develop their confidence in applying these techniques to solve everyday clinical problems. Artificial Intelligence and Big Data in Cardiology systematically describes and technically reviews the latest applications of AI and big data within cardiology. It is ideal for use by the trainee and practicing cardiologist and informatician seeking an up-to-date resource on the topic with which to aid them in developing a thorough understanding of both basic concepts and recent advances in the field.
Cardiovascular Behavioral Medicine by
Cardiovascular disease is the leading cause of morbidity and mortality in the United States and worldwide. It is well recognized that traditional risk factors for cardiovascular disease have limited predictive utility in the identification of new cardiovascular disease cases and outcomes. Thus, investigators have argued that application of a biopsychosocial research paradigm in this field may be of particular utility in understanding cardiovascular disease pathogenesis. Accordingly, a subdiscipline within the field of behavioral medicine - cardiovascular behavioral medicine - examines interrelations among biological, behavioral, psychological, social, and environmental factors in cardiovascular health and disease. In 1989, Schneiderman and colleagues published a seminal work entitled "Research Methods in Cardiovascular Behavioral Medicine." Since that time, there has been an exponential increase in the amount and scope of work in this topic area, but no similar edited volume has been undertaken. The present handbook provides a compendium of work in the field of cardiovascular behavioral medicine, the purposes of which are to summarize research in this area, promote transdisciplinary research and clinical practice, and encourage researchers and clinicians to consider all relevant facets of the disease process in their evaluation and study of cardiovascular disease pathogenesis and outcomes. This handbook has four sections: Section I provides perspectives on the past, present, and future of cardiovascular behavioral medicine, an overview of basic cardiovascular anatomy and physiology, cardiovascular disease classification, and application of the biopsychosocial model to the study of cardiovascular disease. Section IIcovers risk factors for cardiovascular disease from a behavioral medicine perspective, including sociodemographic, behavioral, psychosocial, biomedical, psychophysiological, and environmental risk factors for cardiovascular disease.These chapters offer a discussion of construct definitions, measurement issues, and epidemiological evidence for relations to cardiovascular disease. Section III offers review of multi-level influences in specific cardiovascular disease entities, the evidence- base for relevant biopsychosocial interventions, evaluation of the impact of cardiovascular diseases on behavior, and consideration of common co-morbidities. Section IV covers select statistical and bioethical topics relevant to the field of cardiovascular behavioral medicine. This volume is unique in several respects. First, there is no similar work available in terms of the scope of topic coverage. Second, the inclusion of relevant measurement issues and construct definitions of a comprehensive set of risk factors will be of great assistance to researchers and clinicians in this area who wish to improve their assessment of these variables yet are not familiar with or trained in the various methodologies. Third, the use of multidisciplinary contributors enhances the utility of the work. Representative disciplines include psychology, psychiatry, medicine (e.g., cardiology), nursing, epidemiology, and public health. The primary audiences for this work are researchers, clinicians, and students in each of these disciplines.
Cardiovascular Disease in the Elderly by
The second edition of this book updates, reviews, and discusses the latest findings on the pathophysiology, diagnosis, and management of cardiovascular disease in the older patient. It explains the physiological changes associated with the normal aging process that may lead to the development of disease, to adverse consequences once disease develops, and which alter the risk-benefit equation for medical and other interventions designed to diagnose, assess, and treat cardiovascular disease. Chapters address key issues in the management of cardiovascular disease in the elderly including prevention, coronary artery disease, valvular disease, hypertensive disease, arrhythmias, and interventions. Wherever possible, the authors take an evidence-based approach to recommendations and rely heavily on clinical trials. The value of lifestyle changes in the aging population, the use of primary and secondary prevention strategies, treatments, and complications are also discussed. Cardiovascular Disease in the Elderly offers physicians and other related providers who care for older patients a gold-standard approach to understanding and managing cardiovascular disease in this group.
Cardiovascular Signaling in Health and Disease by
This contributed volume focuses on cardiovascular diseases (CVDs), and explores the ways in which signaling mechanisms at the biochemical, molecular, and cellular levels in the blood vessels (vascular) and heart contribute to the underlying causes of development and progression of the CVDs. This volume covers unique topics such as oxidant signaling in vascular and heart diseases and health, cytoskeletal signaling in vascular health and disease, phospholipase signaling in CVDs, lipid signaling in vascular and myocardial health and diseases, and drug discovery in cellular signaling for cardiovascular diseases. This book assembles the most important discoveries made by leaders on the cellular signaling mechanisms operating behind the development and progression of life-threatening CVDs. It is an extremely useful resource for the investigators in the field of CVDs, and opens the discussion for further discovery of efficient management and effective treatment of the CVDs.
Cardiovascular Toxicity and Therapeutic Modalities Targeting Cardio-Oncology: From basic research to advanced study by
Cardiovascular Toxicity and Therapeutic Modalities Targeting Cardio-Oncology: From Basic Research to Advanced Study analyzes the emerging the field of cardio-oncology, reviewing recent advancements in the field, discussing how to monitor and treat cancer survivors for cardiotoxicity, and identifying potential cardiac side effects in novel cancer therapies. By adopting a translational approach, the book first comprehensively covers the basic science, mechanisms and concepts, which is followed by advanced state-of-art of cardio-oncology. Other sections cover tyrosine kinase inhibitors, Anthracyclines, and biomarkers in cardiotoxicity induced by chemotherapeutic drugs, noninvasive cardiovascular imaging techniques, radiotherapy induced cardiovascular, and more. Anti-cancer treatment is associated with serious cardiovascular adverse events, including arterial and pulmonary hypertension, supraventricular and ventricular arrhythmias, systolic and diastolic cardiac dysfunction and coronary artery disease. Progress in cancer therapy over the past decades improved long-term survival but increased cancer therapy-related cardiotoxicity. Both traditional chemotherapeutic agents and newer therapies have demonstrated profound cardiovascular toxicities. It is important to understand the mechanisms of these toxicities to establish strategies for the prevention and management of complications--arrhythmias, heart failure, and even death. Adopts a translational approach and comprehensively covers the basic science, mechanisms and concepts of cardio-oncology Outlines the current knowledge of biomarkers in cancer therapy-related cardiotoxicity Provides an understanding of the mechanisms of cardiovascular toxicity of various therapies that may lead to the identification of novel targets to reduce vascular complications
Clinical Cases in the Management of Complex Cardiovascular Disease by
The cases presented in this book represent a cross-section of clinical cardiology experience in a very busy academic hospital. It provides a practical resource for diagnosing and treating complex cases especially for early career cardiologists. A unique feature of this book is the many examples of both rare and common cardiology consults, exploring the patient history, physical examination, ECG, echocardiography and other diagnostic tests, and treatment options. Clinical Cases in the Management of Complex Cardiovascular Disease provides an exceptional resource for clinicians who wants to be involved in cardiology consults. Consequently, it is important reading for cardiologists, cardiology residents, internists and intensive care physicians.
Fuster and Hurst's the Heart, 15th Edition by
The landmark text that belongs in the hands of every cardiologist--fully updated and reorganized to make it more patient-centric than ever World-famous for its authority, currency, and clinical relevance, Fuster and Hurst's The Heart is cardiology's longest continuously published reference book. Written to meet the ever-changing needs of cardiologists, fellows, and interns, this trusted classic offers a solid foundation in cardiovascular medicine and complete coverage of all major cardiovascular topics. For this brand-new edition, cardiology legend Dr. Valentin Fuster and his editorial team have significantly enhanced this definitive guide to make it even more focused on the practicalities of patient care. Enhancements include: Content presented in a more methodical pattern, from mechanism to management Chapter summaries and infographics throughout Engaging visual/text features highlighting genetics, epidemiology and natural history, invasive and noninvasive diagnostics, treatment, clinical therapeutic challenges, and risk factors. ACC/AHA/ESC guidelines in all chapters
Hypertension and Cardiovascular Disease in Asia by
This book will cover all aspects of hypertension and the manifestations of cardiovascular disease in the Asian population. Asia has the largest population of all the continents, and also has the largest number of people suffering from these diseases. Due to an expanding economy and increasing affluent lifestyles, their incidence is increasing at alarming rates - in fact, this continent is a ticking time bomb for HTN and CVD outbreaks. The book fills a large gap, as there are currently no volumes on this topic - and provides much-needed information for physicians not only in Asia but globally. Not only physicians, but also all related medical professionals and libraries will benefit from this book, to which renowned international experts contributed.
Integrating Lifestyle Medicine in Cardiovascular Health and Disease Prevention by
Cardiovascular disease (CVD) is the leading cause of morbidity and mortality in the United States and around the world. Major risk factors for CVD result from poor lifestyle habits and practices, but the area of lifestyle medicine has emerged to help clinicians and their patients understand the power of positive lifestyle habits and actions. Written by cardiologist and lifestyle medicine pioneer, Dr. James Rippe, Integrating Lifestyle Medicine in Cardiovascular Health and Disease Prevention introduces the principles of lifestyle medicine with the practice of cardiology to help lower the risk of heart disease and, if already present, assist in its treatment. This book provides evidence-based information on both the prevention and treatment of CVD through lifestyle measures such as regular physical activity, sound nutrition, weight management and avoidance of tobacco products. This information aids physicians and patients to better understand multiple linkages between poor habits and practices, employing them with associated behavioral techniques to lessen the likelihood of developing CVD. Features: Summarizes major issues in CVD including heart attack, stroke, atrial fibrillation, high blood pressure, lipid abnormalities and obesity. Provides protocols for overcoming a sedentary lifestyle and using lifestyle medicine techniques to optimize brain health. Empowers clinicians with vital information for consultations on the power of lifestyle medicine practices, both to treat symptoms if already present or to prevent major components of CVD from developing in the future. Written for practitioners at all levels, this user-friendly volume in the Lifestyle Medicine series is valuable to practitioners in general medicine or subspecialty practices including lifestyle medicine and cardiology.
Personalized Health Systems for Cardiovascular Disease by
Personalized Health Systems for Cardiovascular Disease is intended for researchers, developers, and designers in the field of p-health, with a specific focus on management of cardiovascular diseases. Biomedical engineers will benefit from coverage of sensors, data transmission, signal processing, data analysis, home and mobile applications, standards, and all other subject matters developed in this book in order to provide an integrated view of the different and multidisciplinary problems related to p-health systems. However, many chapters will also be interesting to physicians and other professionals who operate in the health domain. Students, MS and PhD level, mainly in technical universities, but also in medical schools, will find in this book a complete view of the manifold aspects of p-health, including technical problems related to sensors and software, to automatic evaluation and correct interpretation of the data, and also some legal and regulatory aspects. This book mainly focuses on the development of technology used by people and patients in the management of their own health. New wearable and implantable devices allow a continuous monitoring of chronic patients, with a direct involvement of clinical centers and physicians. Also, healthy people are more and more interested in keeping their own wellness under control, by adopting healthy lifestyles and identifying any early sign of risk. This is leading to personalized solutions via systems which are tailored to a specific patient/person and her/ his needs. However, many problems are still open when it comes to p-health systems. Which sensors and parameters should be used? Which software and analysis? When and how? How do you design an effective management plan for chronic pathologies such as cardiovascular diseases? What is useful feedback for the patient or for the clinician? And finally, what are the limits of this approach? What is the view of physicians? The purpose of this book is to provide, from a technical point of view, a complete description of most of the elements which are part of such systems, including the sensors and the hardware, the signal processing and data management procedures, the classification and stratification models, the standards and the regulations, focusing on the state of the art and identifying the new directions for innovative solutions. In this book, readers will find the fundamental elements that must be taken into account when developing devices and systems in the field of p-health.
Public Health Approach to Cardiovascular Disease Prevention and Management by
Cardiovascular Diseases (CVDs) are the number one cause of death and disability globally, being the most important public health problem that needs to be tackled as more people die annually from CVDs than from any other cause. Over three quarters of CVD deaths take place in low- and middle-income countries. This book on cardio-vascular diseases provides an overview of the global and regional challenges associated with CVDs. Coupled with case studies and theoretical concepts, it helps the reader to contextualize CVDs in the broader public health system and the administrative aspects of practicing CVD control approaches for improved population health in their local setting. Key Features: 1. Covers existing and emerging issues in cardiovascular disease epidemiology and prevention. 2. Has a multi-disciplinary approach in content and audience. 3. Connects with health systems and relevant sustainable development goals 4. Provides case studies for enabling readers to understand and apply evidence-based solutions to key public health issues. 5. Has inputs from globally renowned public health experts.
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